Top : Tuberous Sclerosis
Living with Autism or PDD certainly isn`t a breeze, you will need info and support and most often this does not appear.
This web site was built as a focalpoint to help you locate the information you need to meet the challenges ahead with skill and fortitiude.
We have collected all the webpages about Autism, PDD and Rett Disorder that we could and made a PDD directory with a built-in search function.
Sites:
- Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program - Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
- Information and support for persons affected by Tuberous Sclerosis Complex in Canada. - Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
- Kolten's Tuberous Sclerosis Page - Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
- Marian's Life with Tuberous Sclerosis - Marian's story. Information about the disease, pictures, contacts, medicine, links.
- Matthew's Site for Tuberous Sclerosis Awareness - Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
- National Library of Medicine - A list of synonyms, a summary and major features of tuberous sclerosis.
- NORD: Tuberous Sclerosis - Offers alternative names, a general discussion and further resources.
- Pediatric Oncall- Tuberous Sclerosis - Offers commonly asked questions about this disease.
- Team Tamara - Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
- Tuberous Sclerosis - A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Autism Directory: Tuberous Sclerosis
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