Top : Prader-Willi Syndrome
Living with Autism or PDD sure isn`t simple, you will need support and in many cases this is not immediately forthcoming.
We built this site as an center of information to identify the intelligence you want to face the difficulties to come in the best way possible.
We have located all the web pages covering Autism, Pervasive Developmental Disorders and Rett Disorder out there, and made them into a portal which has a search function.
Sites:
- Gretton Homes - Information about the organization that offers residential care for people with Prader-Willi Syndrome.
- Ontario Prader-Willi Syndrome Association - OPWSA provides support and information to all those interested in finding out about this syndrome. A special emphasis on Canadian content.
- Prader-Willi Alliance of New York - Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
- Prader-Willi Syndrome - Suite101 - A forum to provide a support base for PWS without having to join one of the national or international associations, and to make people more aware of PWS.
- Prader-Willi Syndrome Association (USA) - Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe.
- Prader-Willi Syndrome Association of South Africa - Informative regarding PWS, its symptoms, causes, prevention and treatment.
- Prader-Willi Syndrome Association of Victoria (Australia) - Includes details about the organization, a diagnosis/infant guide, a general guide, members stories and links.
- PWS Notes - Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
- The Foundation for Prader-Willi Research - A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.
- The New Jersey Chapter of the Prader-Willi Syndrome Association - Includes news, important dates, fund raising, maps and links.
Autism Directory: Prader-Willi Syndrome
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